We know how hard it can be to get answers and find connection with a rare disease. This is a public group where you can connect with others affected by achondroplasia (ACH), the most common cause of short stature, or dwarfism. Whether you care for someone diagnosed with achondroplasia, you are diagnosed with the condition yourself, or you are an ACH patient advocate or educator, we are here to support you! In this group, you can chat freely about your experiences, discover resources and events, and find peer support along your achondroplasia journey.
38 Members
3 Leaders
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We know how hard it can be to get answers and find connection with a rare disease. This is a public group where you can connect with others affected by achondroplasia (ACH), the most common cause of short stature, or dwarfism. Whether you care for someone diagnosed with achondroplasia, you are diagnosed with the condition yourself, or you are an ACH patient advocate or educator, we are here to support you! In this group, you can chat freely about your experiences, discover resources and events, and find peer support along your achondroplasia journey.
38 Members
3 Leaders
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Group Details
We know how hard it can be to get answers and find connection with a rare disease. This is a public group where you can connect with others affected by achondroplasia (ACH), the most common cause of short stature, or dwarfism. Whether you care for someone diagnosed with achondroplasia, you are diagnosed with the condition yourself, or you are an ACH patient advocate or educator, we are here to support you! In this group, you can chat freely about your experiences, discover resources and events, and find peer support along your achondroplasia journey.
Welcome to Let’s Talk Achondroplasia, a safe and inclusive space for peer support and connection around achondroplasia. We’re so happy you’re here! Feel free to make a post introducing yourself and tell us about how ACH has affected you. You can share as much or as little of your story as you’d like — whatever feels right.
Group Guidelines
Comments or posts that could be considered graphic or violent and possibly triggering to others in the group will result in removal of those comment(s) or post(s). Some words used can also result in removal of content. Repeated violations can result in removal of account.
Abuse of other group members will not be tolerated. Personal attacks, threats or harassment of any kind will result in termination of your account. Group members can report any comment or post they feel is abusive as well as provide input on the situation.
Publicly listing personal contact information will not be permitted. Personal contact information includes but is not limited to email addresses, phone numbers or physical addresses. If any of these are used as a username or display name or appears in your bio, it will be deleted or changed by staff.
Solicitation of any kind will result in removal of comment(s) or post(s) and possible termination of an account. Solicitation includes but is not limited to advertisement of merchandise, services, websites, blogs, and podcasts.
No identifiable account or group data will be shared with The Mighty. The Mighty may share overall themes, aggregated (combined) insights or contextual quotes with partners to help them better understand the experiences of people with achondroplasia and their caregivers. You will not be identified in any of the data shared, and none of your data will be tied to you personally.
The Mighty cares deeply about your privacy. We will never share any personal information about you without your explicit consent. To learn more about The Mighty’s data handling practices and your choices and rights over your data, please find our privacy policy here: https://themighty.com/privacy/.