Have you ever told someone you dislocated a joint, followed by “it’s fine, though?” Or maybe you grew up thinking everyone was as flexible as you, or got really dizzy when they stood up quickly, or that everyone was in pain all the time... until you realized you weren’t the “norm.” This group 100% gets it.
Whether you have an official diagnosis of EDS or HSD or not, you don’t have to explain the ins and outs of what life with Ehlers-Danlos syndrome is like when you’re here — we understand, we’ve been there, and we’re here to support you.
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Have you ever told someone you dislocated a joint, followed by “it’s fine, though?” Or maybe you grew up thinking everyone was as flexible as you, or got really dizzy when they stood up quickly, or that everyone was in pain all the time... until you realized you weren’t the “norm.” This group 100% gets it.
Whether you have an official diagnosis of EDS or HSD or not, you don’t have to explain the ins and outs of what life with Ehlers-Danlos syndrome is like when you’re here — we understand, we’ve been there, and we’re here to support you.
6.3K Members
2 Leaders
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Have you ever told someone you dislocated a joint, followed by “it’s fine, though?” Or maybe you grew up thinking everyone was as flexible as you, or got really dizzy when they stood up quickly, or that everyone was in pain all the time... until you realized you weren’t the “norm.” This group 100% gets it.
Whether you have an official diagnosis of EDS or HSD or not, you don’t have to explain the ins and outs of what life with Ehlers-Danlos syndrome is like when you’re here — we understand, we’ve been there, and we’re here to support you.
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